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What are the lived experiences of people living with Facial Eye Disfigurement (FED) and their family members?

thesis
posted on 2023-08-01, 03:54 authored by ZALI MAREE O'DEA
The face is key to communication, especially the eyes. This thesis explores the lived experience of people living with Facial Eye Disfigurement (LwFED) and their family members. I write from insider/researcher perspectives. A qualitative study utilising autoethnography and Interpretative Phenomenological Analysis case studies of seven people, male/female, acquired/congenital FED, family members and individuals LwFED. The participants live with four forms of grief chiefly chronic sorrow, disenfranchised, non-finite grief and the loss of their assumptive world. Discussion is raised how participants use my foundation blocks of forgiveness; active intentional decisions (AID); healthy self-esteem (spirituality) and resilience to live with FED healthily.

History

Principal supervisor

Jane Elizabeth Southcott

Year of Award

2023

Department, School or Centre

Education

Course

Doctor of Philosophy

Degree Type

DOCTORATE

Faculty

Faculty of Education

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