File(s) under permanent embargo

Reason: Restricted by author. A copy can be supplied under Section 51 (2) of the Australian Copyright Act 1968 by submitting a document delivery request through your library or by emailing

Transitional Togetherness: The changing nature of the parent-healthcare provider relationship when a child dies in the paediatric intensive care unit

posted on 27.11.2017, 01:00 by ASHLEIGH ELIZABETH BUTLER
This thesis explores the relationships between parents and healthcare providers when a child dies in the paediatric intensive care unit (PICU). A constructivist grounded theory methodology was used to explore the experiences of 26 bereaved parents from 4 Australian PICUs. The theory developed, Transitional togetherness, demonstrates the ways in which the parent-healthcare provider relationship develops and changes across the child's illness trajectory, based on the changing needs of the parents. Three stages are identified and discussed: Welcoming expertise, Becoming a team, and Gradually disengaging.These findings provide a framework for understanding and working within the changing parent-healthcare provider relationship.


Principal supervisor

Helen Grace Hall

Additional supervisor 1

Beverley Copnell

Year of Award


Department, School or Centre

Nursing and Midwifery

Campus location



Doctor of Philosophy

Degree Type



Faculty of Medicine Nursing and Health Sciences