Monash University

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Transitional Togetherness: The changing nature of the parent-healthcare provider relationship when a child dies in the paediatric intensive care unit

posted on 2017-11-27, 01:00 authored by ASHLEIGH ELIZABETH BUTLER
This thesis explores the relationships between parents and healthcare providers when a child dies in the paediatric intensive care unit (PICU). A constructivist grounded theory methodology was used to explore the experiences of 26 bereaved parents from 4 Australian PICUs. The theory developed, Transitional togetherness, demonstrates the ways in which the parent-healthcare provider relationship develops and changes across the child's illness trajectory, based on the changing needs of the parents. Three stages are identified and discussed: Welcoming expertise, Becoming a team, and Gradually disengaging.These findings provide a framework for understanding and working within the changing parent-healthcare provider relationship.


Principal supervisor

Helen Grace Hall

Additional supervisor 1

Beverley Copnell

Year of Award


Department, School or Centre

School of Nursing and Midwifery

Campus location



Doctor of Philosophy

Degree Type



Faculty of Medicine Nursing and Health Sciences