Evaluation of the impact, data collection and feedback mechanisms of clinical registries in Australia

This thesis examines the impact of clinical quality registries (CQRs) on quality of care and health outcomes; attributes of Australian CQRs; and the most effective method of collecting patient-reported outcomes (PROs). The systematic review identified 16 of 17 registry intervention studies demonstrating a positive impact on patient care and outcomes. The cross sectional survey identified that the duration of registry operation and consent process most significantly impact the quality of data collected by registries. The randomised controlled trial demonstrated equivalence in data completeness between email, postal and telephone PRO approaches but that email provided the most efficient data collection approach.