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Monash Partners Data Sharing Agreement and Principles

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Version 2 2022-10-17, 20:52
Version 1 2021-06-23, 01:04
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posted on 2022-10-17, 20:52 authored by Cathie PigottCathie Pigott, Helena Teede
The Monash Partners Data Sharing Agreement and Principles guide the activity of information sharing for healthcare improvement. Access to data, for health care improvement and research, provides our greatest opportunity to unlock the value in this data and benefit the public through improvements in clinical care, prevention, screening and treatment.
The Data Sharing Agreement and Principles are intended to augment existing ethics and grant review practices as well as internal custodian processes. They provide a consistent,
thorough and informed approach to decisions about the sharing of data.
They support the streamlining of efficient data access and
sharing, and align with the National Health and Medical
Research Council (NHMRC), ‘Principles for accessing and using publicly funded data for health research’.
The aim is to establish a data sharing relationship to facilitate safe, lawful and appropriate sharing of health data. With agreed data handling solutions in place, the delay and frustration of having to reinvent a data extraction, encryption, storage and access solution for each individual project can be circumvented.
The Agreement and Principles clarify the laws and regulations that all Organisations must comply with when managing the sharing of health-related data.

Funding

Medical Research Future Fund Rapid Applied Research Translation Program Grant

History